网站综合信息 www.g6pd.org
    • 标题:
    • G6PD Deficiency Association - Home 
    • 关键字:
    • G6PD Deficit Glucose 6 Phosphate Dehydrogenase enzyme deficit jaun 
    • 描述:
    • The first Web site established to offer information for G6PD deficient persons. Established in 1995  
    • 域名信息
    • 域名年龄:23年11个月22天  注册日期:2000年05月09日  到期时间:
      邮箱:chanan.zass  电话:+39.0415347801
      注册商:Tucows Inc. (R11-LROR) 
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    g6pd.org

    域名年龄: 23年11个月22天
    注册时间: 2000-05-09
    注 册 商: Tucows Inc. (R11-LROR)
    注册邮箱: chanan.zass
    联系电话: +39.0415347801

    获取时间: 2015年04月22日 19:54:34
    Domain Name:G6PD.ORG
    Domain ID: D26695734-LROR
    Creation Date: 2000-05-09T17:38:34Z
    Updated Date: 2015-04-09T18:08:23Z
    Registry Expiry Date: 2016-05-09T17:38:34Z
    Sponsoring Registrar:Tucows Inc. (R11-LROR)
    Sponsoring Registrar IANA ID: 69
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    Domain Status: clientTransferProhibited -- http://www.icann.org/epp#clientTransferProhibited
    Domain Status: clientUpdateProhibited -- http://www.icann.org/epp#clientUpdateProhibited
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    Registrant Name:Oracle of Endor Ditta Individuale Oracle of Endor Ditta Individuale
    Registrant Organization:Oracle of Endor Ditta Individuale
    Registrant Street: Via Amba Aradam, 12
    Registrant City:MESTRE
    Registrant State/Province:VE
    Registrant Postal Code:30173
    Registrant Country:IT
    Registrant Phone:+39.0415347801
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    Registrant Email:chanan.zass
    Admin ID:tu2BX6kPp6JlNwHl
    Admin Name:Oracle of Endor Ditta Individuale Oracle of Endor Ditta Individuale
    Admin Organization:Oracle of Endor Ditta Individuale
    Admin Street: Via Amba Aradam, 12
    Admin City:MESTRE
    Admin State/Province:VE
    Admin Postal Code:30173
    Admin Country:IT
    Admin Phone:+39.0415347801
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    Admin Fax: +39.0415347807
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    Admin Email:chanan.zass
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    Tech Name:Oracle of Endor Ditta Individuale Oracle of Endor Ditta Individuale
    Tech Organization:Oracle of Endor Ditta Individuale
    Tech Street: Via Amba Aradam, 12
    Tech City:MESTRE
    Tech State/Province:VE
    Tech Postal Code:30173
    Tech Country:IT
    Tech Phone:+39.0415347801
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    Tech Fax: +39.0415347807
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    Tech Email:chanan.zass
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    抓取时间:2020年03月02日 08:56:59
    网址:http://www.g6pd.org/
    标题:G6PD Deficiency Association - Home
    关键字:G6PD Deficit, Glucose-6-Phosphate Dehydrogenase, enzyme, deficit, jaundice, hemolysis, hemolytic anemia, hemolytic react
    描述:The first Web site established to offer information for G6PD deficient persons. Established in 1995 with the help of the late Ernest Beutler M.D. and the active support of Lucio Luzzatto M.D. Includes
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    HomeG6PD DeficiencyCommunityNewsEventsSearch
    G6PD Deficiency Association: Home
    The Association
    Our Activities
    The association offers assistance to persons affected by the G6PD enzyme deficiency and their families, including informing and educating affected persons and the medical community on all aspects of the deficiency; helping organize petitions calling for government actions; and more. 
    Among the resources offered by the association are lists of contraindicated drugs (including some trade-names); an online forum (viewing only); mailing lists; and a reserved area for medical professionals.   Your contribution counts. You will be helping us to provide information and educate patients and medical personnel (as well as you and your family) about the various aspects of G6PD deficiency and the latest developments in this field. 
    You will also be granted access to protected areas of our site, including:
    - Trade-name search of contraindicated drugs;
    - Mailing-list search; 
    - The Association's informative brochure; 
    - Etc.       Brochure View or print this quick reference handout, including answers to frequently asked questions, lists of drugs and foodstuff to avoid or that are safe to take, and more. [For paying members only.]   Web Links Links to additional sources of information available online. The list is updated often. Visitors' suggestions are welcomed.
    Assistance
    Neonates A must-read for new parents. Learn of common risks and what to watch out for in the most delicate moment in the life of a G6PD deficient baby. Even if newborn screening for G6PD deficiency is performed in your hospital, you should still read this.   Health Care Providers & Test Labs List of health care providers and test labs near you: check your enzyme level and diagnose your G6PD deficiency. Find out where you can determine your deficiency variant and enzyme level. [Currently lists only European centers.]   High- and Low-Risk Drugs  List of drugs and foodstuff that should be avoided or taken with caution by G6PD deficient patients, along with their risk levels. Reaction to these drugs vary according to variant and other conditions, such as fatigue, stress level, altitude, etc. Please consult with your pediatrician or physician before taking any of these.   Articles & Research Papers A collection of research papers, including fundamental articles by such world experts in the field as the late Ernest Beutler M.D. and Prof. Lucio Luzzatto; must-read articles about neonatal jaundice and kernicterus; papers on muscular problems caused by exercise; and more.
    HomeG6PD DeficiencyCommunityNewsEventsSearch
    News
    G6PD Deficiency and Glaucoma
    Dorzolamide (trade name, Trusopt), Brinzolamide (Azopt) and Acetazolamide (Diamox pills) are contraindicated for persons suffering from G6PD deficiency.
    Braccialetto e carta Ice-Key
    L' Associazione Italiana Favismo e Ice-Key Italy sono lieti di offrire ai soci dell'Asso

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