网站综合信息 www.ntsa.org
    • 标题:
    • Tuberous Sclerosis Alliance 
    • 关键字:
    • Tuberous Sclerosis Complex support genetics treatment online discu 
    • 描述:
    • US advocacy and support organization provides information about tuberous sclerosis complex, research 
    • 域名信息
    • 域名年龄:27年9个月10天  注册日期:1996年09月04日  到期时间:
      邮箱:hosting  电话:+1.3018656174
      注册商:Tucows Inc. (R11-LROR) 
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    • IP:76.12.172.142 同IP网站2个 详情
      地址:美国 联合航空通信网络(北部通用)
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    ntsa.org

    域名年龄: 27年9个月10天
    注册时间: 1996-09-04
    注 册 商: Tucows Inc. (R11-LROR)
    注册邮箱: hosting
    联系电话: +1.3018656174

    获取时间: 2015年02月10日 01:53:18
    Domain Name:NTSA.ORG
    Domain ID: D2200894-LROR
    Creation Date: 1996-09-04T04:00:00Z
    Updated Date: 2014-08-27T13:45:51Z
    Registry Expiry Date: 2015-09-03T04:00:00Z
    Sponsoring Registrar:Tucows Inc. (R11-LROR)
    Sponsoring Registrar IANA ID: 69
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    Domain Status: ok -- http://www.icann.org/epp#ok
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    Registrant Name:Gwendolyn Gainer
    Registrant Organization:Teramark LLC
    Registrant Street: P O Box 310
    Registrant City:New Market
    Registrant State/Province:MD
    Registrant Postal Code:21774
    Registrant Country:US
    Registrant Phone:+1.3018656174
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    Registrant Email:hosting
    Admin ID:tu1hSiHh1WVKiuJm
    Admin Name:Gwendolyn Gainer
    Admin Organization:Teramark LLC
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  • Tuberous Sclerosis Alliance ntsa.org
  • Tuberous Sclerosis Alliance www.ntsa.org
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    网站首页快照(纯文字版)
    抓取时间:2019年09月07日 18:01:50
    网址:http://www.ntsa.org/
    标题:Tuberous Sclerosis Alliance
    关键字:Tuberous Sclerosis Complex, support, genetics, treatment, online discussion groups, events, Step Forward to Cure TSC, wa
    描述:US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
    主体:
    About UsStoreLinksRequest InformationFor the MediaEn EspanolContact UsMission Statement/HistoryAnnual & Financial ReportsStrategic PlanFrequently Asked QuestionsStaff DirectoryBoard of DirectorsEndowment FundCorporate Advisory BoardCorporate Relations PolicyAbout TSCFor the Newly DiagnosedFor Individuals & FamiliesFor Healthcare ProfessionalsFor Researchers & ScientistsFor School IssuesWhat Is TSC?How Is TSC Diagnosed?Signs of TSCGenetics of TSCLiving With TSCAdult ResourcesYoung Adult ResourcesFamily SupportTSC ConnectPublications & Information SheetsTSC ClinicsPhysician ReferralTSC Clinical TrialsTSC Natural History DatabaseTissue DonationAudio & Video ArchivesState & National ResourcesBrochures, Books, & BookletsInformation SheetsPerspective Magazine ArchivesLife Stages Guides & Personal JournalsTSC Research Article Summaries2014 World TSC Conference Session VideosResearch Teleconference PresentationsClinical ManifestationsDiagnostic CriteriaTSC Consensus RecommendationsPublicationsClinical TrialsTissue DonationProfessional Advisory BoardTSC Professionals Online Discussion GroupProfessional Referral List Sign UpTSC ClinicsCME OpportunitiesTS Alliance Grants ProgramOther TSC Funding OpportunitiesTSC Alert Newsletter ArchivesClinical TrialsTSC Natural History DatabaseResearch ResourcesInternational Scientific Advisory BoardTSC Professionals Online Discussion Group2013 International Research Conference HighlightsGet InvolvedFind  a Local BranchFind a Global AllianceBecome a VolunteerBecome a MemberGovernment OutreachConnect With OthersWays to GiveYour ImpactVolunteer Sign-Up FormSpecial EventsTSC ConnectOutreach & Awareness ToolsGovernment Relations OverviewOutreach ToolkitGovernment Action TeamTS Alliance Online Support CommunityFacebookTwitterYouTubeCaringBridgeHow to Make a DonationResearch Directed DonationsTributesPlanned Giving/EndowmentsPartner OffersWorkplace Giving/Matching ProgramPersonal Online FundraisingJoin us October 23 in New York City for a unique theater-based celebration of our 40th anniversary.The Rare Epilepsy Network Registry (REN) will be opening for enrollment in about a month. Find a walk near you to help us Step Forward to Cure Tuberous Sclerosis Complex.Clinicians: Complete a new online CME activity featuring experts in TSC diagnosis and management.Follow some very special people on the 2014 TSC Road to the Special Olympics.Learn about clinical trials and see a list of current trials/studies related to TSC.Visit this new website to find and enroll in clinical studies and advance epilepsy research.Unlock the Cure: The Tipping Point in the Battle Against TSCTuberous Sclerosis Alliance OverviewLa Esclerosis Tuberosa (Spanish Intro to TSC)Infantile Spasms & TSC: A Devastating DiagnosisQuestions & Answers About the TS AllianceABOUT TSCWhat is TSC?How is TSC Diagnosed?Signs of TSCGenetics of TSCINDIVIDUALS & FAMILIESLiving with TSCFamily SupportAdult Resources TSC ConnectBrochures & Booklets Information Sheets Life St

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