网站综合信息 www.wecan.org
- 标题:
- CAN
- 关键字:
- 描述:
- 域名信息
- 域名年龄:21年5个月27天 注册日期:2003年12月13日 到期时间:2013年12月13日
邮箱:lee.becker 电话:+1.9734252700
注册商:TierraNet Inc. dba DomainDiscover (R86-LROR)
- 服务器空间
- IP:108.167.156.131
地址:美国
- 备案信息
- 备案号:
域名流量Alexa排名
域名注册Whois信息
wecan.org
域名年龄: 21年5个月27天注册时间: 2003-12-13
到期时间: 2013-12-13
注 册 商: TierraNet Inc. dba DomainDiscover (R86-LROR)
注册邮箱: lee.becker
联系电话: +1.9734252700
获取时间: 2013年07月25日 12:33:28
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Domain ID:D103442081-LROR
Domain Name:WECAN.ORG
Created On:2003-Dec-13 15:06:32 UTC
Last Updated On:2013-Jul-16 22:27:54 UTC
Expiration Date:2013-Dec-13 15:06:32 UTC
Sponsoring Registrar:TierraNet Inc. dba DomainDiscover (R86-LROR)
Status:CLIENT TRANSFER PROHIBITED
Registrant ID:TNTN-0001255562
Registrant Name:Lee Becker
Registrant Organization:Champions Action Network
Registrant Street1:1095 Mt. Kemble Avenue
Registrant Street2:2nd Floor
Registrant Street3:
Registrant City:Morristown
Registrant State/Province:NJ
Registrant Postal Code:07960
Registrant Country:US
Registrant Phone:+1.9734252700
Registrant Phone Ext.:
Registrant FAX:+1.9734252701
Registrant FAX Ext.:
Registrant Email:lee.becker
Admin ID:TNTN-0001255562
Admin Name:Lee Becker
Admin Organization:Champions Action Network
Admin Street1:1095 Mt. Kemble Avenue
Admin Street2:2nd Floor
Admin Street3:
Admin City:Morristown
Admin State/Province:NJ
Admin Postal Code:07960
Admin Country:US
Admin Phone:+1.9734252700
Admin Phone Ext.:
Admin FAX:+1.9734252701
Admin FAX Ext.:
Admin Email:lee.becker
Tech ID:TNTN-0001255562
Tech Name:Lee Becker
Tech Organization:Champions Action Network
Tech Street1:1095 Mt. Kemble Avenue
Tech Street2:2nd Floor
Tech Street3:
Tech City:Morristown
Tech State/Province:NJ
Tech Postal Code:07960
Tech Country:US
Tech Phone:+1.9734252700
Tech Phone Ext.:
Tech FAX:+1.9734252701
Tech FAX Ext.:
Tech Email:lee.becker
Name Server:FORSALE2.REQUESTDOMAINQUOTE.COM
Name Server:FORSALE1.REQUESTDOMAINQUOTE.COM
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HTTP/1.1 301 永久重定向 访问时间:2019年09月09日 16:05:49 X-Redirect-By: WordPress Upgrade: h2,h2c 连接:Upgrade, Keep-Alive 目标网址:http://wecan.org/ 文件大小:0 Keep-Alive: timeout=5, max=75 类型:text/html; charset=UTF-8 HTTP/1.1 503 Service Unavailable 访问时间:2019年09月09日 16:05:49 缓存控制:不缓存,必须更新, max-age=0 Retry-After: 3600 Upgrade: h2,h2c 连接:Upgrade, 关闭 动作:Accept-Encoding Content-Encoding: gzip 文件大小:889 类型:text/html; charset=UTF-8 网站编码:UTF-8
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网址:http://www.wecan.org/
标题:CAN
关键字:
描述:
主体:
网址:http://www.wecan.org/
标题:CAN
关键字:
描述:
主体:
The CME network for orphan diseases Areas of Focus Cystic Fibrosis Pediatric MS Pediatric Oncology About CAN Board of Trustees Contact Areas of Focus Cystic Fibrosis Cystic fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene causes the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. It also obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond. Pediatric MS Childhood Multiple Sclerosis (MS) is not common: Because of the relatively low incidence, pediatricians and most neurologists are not prepared for the specific challenges in the diagnosis and management of the disease in people under 18. Pediatricians may not be familiar with MS because they are not expecting to see it in children. Other childhood disorders with similar symptoms can make diagnosis of MS in children particularly challenging. An estimated 8,000-10,000 children have multiple sclerosis in the United States, and another 10,000- 15,000 experience disorders that may be related to MS, classifying pediatric MS and its associated disorders as an FDA designated orphan disease. Pediatric Oncology While treatment for childhood cancer has improved drastically over the past four decades years from a less than 20 percent survival rate to an approximate 75 percent overall five year cure rate, sadly childhood cancer remains the number one disease killer of our nation's children. Children face aggressive treatments leaving a trail of devastation for their families. The diagnosis of a child with cancer is often at a time when the family is young and has a limited income. The impact of having a child diagnosed with cancer is deeply felt financially, socially, and emotionally by the entire family. Champions Action Network is a non-profit organization with content developed specifically for healthcare professionals. ©2013 Champions Action Network. All rights reserved. Use of this Web site is governed by the Champions Action Network terms of use and privacy statement. Phone: 973.520.1833 Fax: 866.615.3091
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