网站综合信息 hdac.org
- 标题:
- Community | Huntington's Disease Light
- 关键字:
- 描述:
- 域名信息
- 域名年龄:25年4个月18天 注册日期:2000年04月06日 到期时间:
邮箱:stevei 电话:+1.512923811
注册商:Network Solutions, LLC (R63-LROR)
- 服务器空间
- IP:192.254.236.121 同IP网站6个 详情
地址:局域网
- 备案信息
- 备案号:
域名流量Alexa排名
域名注册Whois信息
hdac.org
域名年龄: 25年4个月18天注册时间: 2000-04-06
注 册 商: Network Solutions, LLC (R63-LROR)
注册邮箱: stevei
联系电话: +1.512923811
获取时间: 2015年02月06日 21:33:23
Domain Name:HDAC.ORG
Domain ID: D24348818-LROR
Creation Date: 2000-04-06T20:58:13Z
Updated Date: 2015-02-05T08:02:21Z
Registry Expiry Date: 2016-04-06T20:58:13Z
Sponsoring Registrar:Network Solutions, LLC (R63-LROR)
Sponsoring Registrar IANA ID: 2
WHOIS Server:
Referral URL:
Domain Status: clientTransferProhibited
Domain Status: renewPeriod
Registrant ID:20440353-NSI
Registrant Name:Steven M. Ireland
Registrant Organization:Steven M. Ireland
Registrant Street: 1400 Stoneleigh Rd
Registrant City:Wilmington
Registrant State/Province:DE
Registrant Postal Code:19803
Registrant Country:US
Registrant Phone:+1.512923811
Registrant Phone Ext:
Registrant Fax: +1.254770619
Registrant Fax Ext:
Registrant Email:stevei
Admin ID:20440351-NSI
Admin Name:Steven Ireland
Admin Organization:Rule Domain, LLC
Admin Street: 1400 Stoneleigh Rd
Admin City:Wilmington
Admin State/Province:DE
Admin Postal Code:19803
Admin Country:US
Admin Phone:+1.3025595945
Admin Phone Ext:
Admin Fax:
Admin Fax Ext:
Admin Email:stevei
Tech ID:20440351-NSI
Tech Name:Steven Ireland
Tech Organization:Rule Domain, LLC
Tech Street: 1400 Stoneleigh Rd
Tech City:Wilmington
Tech State/Province:DE
Tech Postal Code:19803
Tech Country:US
Tech Phone:+1.3025595945
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Tech Fax Ext:
Tech Email:stevei
Name Server:NS719.HOSTGATOR.COM
Name Server:NS720.HOSTGATOR.COM
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DNSSEC:Unsigned
Access to Public Interest Registry WHOIS information is provided to assist persons in determining the contents of a domain name registration record in the Public Interest Registry registry database. The data in this record is provided by Public Interest Registry for informational purposes only, and Public Interest Registry does not guarantee its accuracy. This service is intended only for query-based access. You agree that you will use this data only for lawful purposes and that, under no circumstances will you use this data to(a) allow, enable, or otherwise support the transmission by e-mail, telephone, or facsimile of mass unsolicited, commercial advertising or solicitations to entities other than the data recipient's own existing customers; or (b) enable high volume, automated, electronic processes that send queries or data to the systems of Registry Operator, a Registrar, or Afilias except as reasonably necessary to register domain names or modify existing registrations. All rights reserved. Public Interest Registry reserves the right to modify these terms at any time. By submitting this query, you agree to abide by this policy.
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抓取时间:2019年06月16日 01:36:04
网址:http://hdac.org/
标题:Community | Huntington's Disease Lighthouse Families
关键字:
描述:
主体:
网址:http://hdac.org/
标题:Community | Huntington's Disease Lighthouse Families
关键字:
描述:
主体:
Search this site:Huntington's Disease Lighthouse FamiliesFor HD families ... by HD familiesHome CommunityWelcome to the community section of HDLF.org. This section is intended to help guide you through the wealth of information available on the Internet for families affected by Huntington disease.We invite you to try out our active message board at HDLF Forum. It's a public message board so that you can chose to just read what's there or actually participate by helping others or getting answers to your own questions.Life Goes OnKelly B, Wed, 03/11/2015It has now been over five months since my sister Shannon passed away of Huntington’s and all around me life goes on. After years of being beside her through her journey and putting all my energy into trying to always be a good sister to her especially the last three years, there is a strange and unfamiliar inner peace inside me which I have not felt in many years. My other sister and I did everything in our power to make her life as happy and comfortable as possible. We showed her all the love we possibly could.Living PositiveHD Family LifeKelly B's blogRead moreTo My Newest HD AngelKelly B, Sun, 12/28/2014After years of my watching her progression from a front row seat, my oldest sister finally passed away almost two months ago now. I have been dragging my feet at writing this final chapter of her life as I knew it was going to make me sad all over again and stir up all the grief I still feel in my heart for her.In the five weeks before her death she had a stroke and as her sister, seeing her in diapers and then having to be fed minced food as she had lost the ability to chew with the stroke, I was saddened at the further hit to her pride.Living PositiveHD Family LifeKelly B's blogRead moreI Lost My Brother to HDWill Brown, Tue, 10/07/2014My younger brother Steve died peacefully in his sleep on September 6, 2014 after a rapid deterioration of his Huntington’s symptoms. He and I had been close as kids, but we drifted apart when our lives took us in different directions as adults.Living PositiveHD Family LifeWill Brown's blogRead moreHD and CancerWill Brown, Mon, 09/01/2014I recently had my annual full body scan by my dermatologist for skin cancer. When he entered the examining room I threw my hands up and said, “I plead guilty to running shirtless in the summer without sunscreen!” It was obvious from my perpetual upper body tan, which fades a little in winter.Living PositiveHD Family LifeWill Brown's blogRead moreStaying SaneKelly B, Wed, 04/23/2014Staying sane while living with Huntington's and dealing with affected family members can he a huge challenge for HD families. We are all set to different levels of sanity so some of us have more to spare then others do. I have always found it funny that it is the insane people who believe themselves to be completely sane but it is the sane people who actually question their sanity. So if you wonder if you ARE crazy it is actually proof t
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