抓取时间:2013年10月23日 11:37:00
网址:http://www.hdlf.org/
标题:Huntington's Disease Lighthouse Families | For HD families .
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Search this site:Huntington's Disease Lighthouse FamiliesFor HD families ... by HD familiesSince April 2000 the mission of the HDLighthouse Families Web site is to present and explain the latest research findings so that families afflicted by Huntington's disease can become proactive in their care, have hope for the future, and make good decisions in the present. Additionally we provide information that is vital to the the support of HD families. Where possible we will direct you to specialists in the your area of concern, but if we are able to provide better or more current information then you'll find it here.When It’s Time To QuitWill Brown, Sun, 08/25/2013I’ve written before about finding excuses not to take proactive steps to fight the Huntington’s Disease demons. I’ll try to never quit that battle. However, there are some times when you have to stop doing something, like driving, to insure your safety and that of everyone else on the road. That’s a very difficult thing to do, since it means losing your freedom and admitting that the disease has gotten the better of youLiving PositiveHD Family LifeWill Brown's blogLogin to post commentsRead morePerspectiveKelly B, Tue, 06/11/2013Perspective is the ultimate way to be able to put the things that happen in life into proper focus. How we view things has everything to do with how big a deal we make of some things. There are always three choices in any given situation: Give up, give in or give it all you've got. Time is going extremely fast and in just two days from now, tomorrow will already be yesterday.I had been a Home Support worker for years before I was diagnosed with HD. This would prove to be a huge benefit to me and helped me to put my HD in perspective.Living PositiveHD Family LifeKelly B's blogLogin to post commentsRead moreYou Never Know When You Might Be Able to Save a LifeWill Brown, Tue, 06/11/2013Last Saturday morning I took Sassy, our rescued 13 year old Shih Tzu, on her regular morning stroll in our backyard.  We live on a heavily wooded lot with pine trees reaching up 90 to 100 feet.  We were just about at the base of one when Sassy jumped backwards. I looked down and there was something on the ground covered in grayish down.Living PositiveHD Family LifeWill Brown's blogLogin to post commentsRead moreFinding An Excuse to QuitWill Brown, Tue, 04/16/2013This past Saturday I ran my annual 50 mile race at the Umstead 100 Mile Endurance Run in my hometown of Raleigh, NC.  I have finished the 100 five times and the optional 50 miler 9 times, including this year.  I’m also on the Race Committee and handle registration and awards.Living PositiveWill Brown's blogLogin to post commentsRead moreA Lucky Falling Out of Love Story for Valentines DayWill Brown, Mon, 02/18/2013I know when we fell in love.  She was dating my roommate in prep school. Yes, I went to a snotty boy’s boarding school in New England.  I wasn’t from a wealthy family, but had a working scholarship.  I worked in the kitc