网站综合信息 www.jgsf.org
    • 标题:
    • Epidermolysis Bullosa (EB) - Funding R 
    • 关键字:
    • epidermolysis bullosa epidermolysis bullosa treatment EB Dystrophic 
    • 描述:
    • Epidermolysis Bullosa Cure & Treatment - JGSF funds scientific research with the goal of curing and  
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    • 域名年龄:13年11个月29天  注册日期:2010年05月19日  到期时间:
      邮箱:JGSF.ORG  电话:+1.4806242599
      注册商:GoDaddy.com, LLC (R91-LROR) 
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    jgsf.org

    域名年龄: 13年11个月29天
    注册时间: 2010-05-19
    注 册 商: GoDaddy.com, LLC (R91-LROR)
    注册邮箱: JGSF.ORG
    联系电话: +1.4806242599

    获取时间: 2015年11月22日 16:30:21
    Domain Name:JGSF.ORG
    Domain ID: D159221269-LROR
    Creation Date: 2010-05-19T22:34:55Z
    Updated Date: 2015-05-20T11:33:56Z
    Registry Expiry Date: 2017-05-19T22:34:55Z
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  • Epidermolysis Bullosa (E
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    抓取时间:2013年11月29日 05:12:29
    网址:http://www.jgsf.org/
    标题:Epidermolysis Bullosa (EB) - Funding Research to find a cure
    关键字:epidermolysis bullosa, epidermolysis bullosa treatment, EB, Dystrophic Epidermolysis Bullosa, recessive dystrophic epide
    描述:Epidermolysis Bullosa Cure & Treatment - JGSF funds scientific research with the goal of curing and treating Epidermolysis Bullosa (“EB”). Together we can find a cure and discuss successful treatment
    主体:
    Home
    About JGSF
    About EB
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    What is EB ?  
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    Find a Cure. End EB.
    Imagine your skin being as fragile as a butterfly’s wings.
    Imagine every movement you make causing your skin to shear off your body.
    Imagine cures and treatments being almost within grasp. 
    Welcome to the Jackson Gabriel Silver Foundation (“JGSF”).  We fund scientific research with the goal of curing and treating Epidermolysis Bullosa (“EB”), a group of devastating, painful, disfiguring and currently incurable blistering disorders that affect children from birth.
    Tremendously encouraging and viable research is ongoing to treat and cure EB. Given that EB affects fewer than 25,000 people in the United States,
    advancing this research relies on the generosity of individuals and corporations.
    Curing a rare disease is always a race against the clock. Curing EB is a race against a clock moving at warp speed. The more funds we can raise, the more research we can fund and the more lives we can save. With your help, children with EB can grow up to live full and pain-free lives.
    
    Find a Cure. End EB.
    Home   | About JGSF    |   About EB      |      Get Involved     | Donate      |      Press Room   |      Contact Us
    Web Design By eBizUniverse  
    Copyright © 2010 Jackson Gabriel Silver Foundation - All Rights Reserved. The JGSF is a 501(c)(3) non profit, tax exempt organization 
    designated by the Internal Revenue Code
    Epidermolysis Bullosa (“EB”) is a group of devastating, painful, disfiguring and currently incurable blistering disorders that affect children from birth.  
    Treatment for Epidermolysis Bullosa | What Is Epidermolysis Bullosa?  |  EB Research  |  EB Cure | EB Treatment  | Dystrophic Epidermolysis Bullosa | Junctional Epidermolysis Bullosa |  EB Pictures | Recessive Dystrophic Epidermolysis Bullosa |

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